2024-09-10T13:58:50-05:00 2023-12-31 571157523 Aprio LLP 150 Post Street Suite 200 San Francisco CA 94108 990 2023-01-01 611645660 Lymelight Foundation LYME 6503485509 1229 Burlingame Avenue 205 Burlingame CA 94010 Scott Bedford Chairman 6503485509 2024-09-07 1 1 Stacy Cullen P00974308 4157774488 2024-09-07 2023 2024-08-08 14:25:15Z Scott Bedford 1229 Burlingame Avenue Suite 205 Burlingame CA 94010 1208622 0 X Www.lymelightfoundation.org X 2011 CA Provide grants to children and young adults with Lyme disease who cannot afford treatment. 3 3 0 3 0 0 724671 870869 0 0 1897 12379 205158 -61054 931726 822194 1008700 1060600 0 0 22557 0 0 0 113998 341019 369510 1372276 1430110 -440550 -607916 2497590 1934779 22333 104999 2475257 1829780 Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease. 0 0 1230416 1060600 Lymelight Foundation provides medical grants up to $10,000 (cumulative) to lyme infected children and young adults who cannot pay for necessary medication and therapies. Grants funds cover doctor visits, medications, supplements, lab testing, alternative therapies and transportation to out of area physicians. In 2023, 254 total grants were awarded: 141 to new individuals and 113 to existing recipients. As most insurance companies do not cover the treatment of chronic lyme disease, families are typically left on their own to battle the disease, often incurring extreme medical debt. By providing critical treatment, Lymelight bridges the gap of enormous unmet need. Since its inception in 2011, Lymelight has awarded grants totaling $9,100,370 to 1,289 individuals in 49 states. Lymelight Foundation is dedicated to educating the public on the truth and misconceptions about identifying, contracting and fighting lyme disease. Lymelight Foundation hosts and participates in several lymeawareness and fundraising events including dart for art. Active supporters include singer-song writer avril lavigne and auxiliary and fundraising events in 28 states. LymeLight Foundation continues to promote and utilize the video series called Patient Talk. LymeLight collaborated with other organizations to produce the series in 2017 where real patients tell their stories in addressing the practical, physical and emotional issues they faced when dealing with a life changing Lyme disease medical diagnosis. These educational medical videos detail the long and difficult journeys faced by those with Lyme disease. The videos also provide important information about diagnosis and treatment protocols. The video series has been extremely well received by both the Lyme community and by the broader audience of the general public. It has become a key educational tool. 1230416 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 17 0 1 0 0 0 0 0 0 0 0 0 0 0 X 3 3 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X Scott Bedford 6503485509 1229 Burlingame Avenue Suite 205 Burlingame CA 94010 X Scott Bedford chairman 10.00 X X 0 0 0 Scott forsgren Board member 5.00 X 0 0 0 Nora Thomas Board Member/Program Mgr. 5.00 X 0 0 0 Phyllis Bedford Executive Director 40.00 X 0 0 0 0 0 0 0 0 0 0 0 743745 127124 870869 10407 10407 103020 101048 1972 1972 1972 223977 743745 285380 -61403 -61403 349 0 349 349 822194 0 0 -48675 X 1060600 1060600 42795 42795 259087 121771 23318 113998 19583 19583 6477 6477 5368 5368 Awareness and Education 25925 25925 Credit Card Processing 8830 8830 Supplies 1378 1378 Taxes & Licenses & Perm 67 67 1430110 1230416 85696 113998 859709 654767 299805 406689 1160283 782815 12150 7800 755 20768 164888 61940 2497590 1934779 22333 17624 0 87375 22333 104999 X 1230972 960963 1244285 868817 2475257 1829780 2497590 1934779 X -607916 -1900 -35661 X X 0 1 X 1 0 X 745422 2306779 1338297 724671 814769 5929938 745422 2306779 1338297 724671 814769 5929938 3703241 2226697 5120 2205 551 1897 10407 20180 87 84 1386 627 349 2533 5952651 0.37410 0.28730 X The public support percentage falls below the 33.33% threshhold. Lymelight Foundation receives substantial support from two foundations and several contributors that are unrelated parties. In addition, the organization hosts several fundraising events that are supported by individuals and businesses across the community. The events are open to all. In 2023, Lymelight Foundation received contributions from 705 individuals and businesses. We continue to solicit grants and contributions from numerous diverse funding sources. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 Refundable Advances 87375 87375 X 850794 -1900 30500 28600 822194 0 822194 1460610 30500 30500 1430110 0 1430110 Part X, Line 2: LymeLight Foundation is recognized as a public charity exempt from federal and California income taxes under Section 501(c)(3) of the Internal Revenue Code and Section 23701 of the California Revenue and taxation code. Accordingly, no provision has been made for income taxes in the accompanying financial statements. Dart for Art 918171 743745 174426 5000 48500 29452 55290 1000 175864 Other events 49551 49551 23774 967722 743745 223977 5000 48500 29452 55290 1000 199638 338880 -114903 1 Grants for Medical Treatment 254 1060600 Part I, Line 2: Grant applications are reviewed, and eligibility is verified by the grants coordinator. Awards are determined by the board. Grant amounts are allocated based on available funds. Those receiving grants are required to sign a pledge to verify use of funds. The board does not award the full $10,000 grant initially as verification receipts and support for anticipated expenditures must be submitted. An exit survey is completed by recipients to assess the results of the grant funding and to verify that funds were expended in an appropriate and timely manner. Form 990, Part VI, Section A, line 2 Scott and Phyllis Bedford have a family relationship. Form 990, Part VI, Section B, line 11b Form 990 is reviewed by the board at a regular meeting. The board refers questions to the CPA for response before filing. Form 990, Part VI, Section B, line 12c The governing bylaws include a prohibition against self dealing transactions. The board monitors conflicts of interest, if any, as part of its regular meeting process. Form 990, Part VI, Section B, line 15 The executive director currently serves without compensation. Generally, salaries are determined by the board after reviewing comparable salaries in the area by reference to tax filings and other available information. Form 990, Part VI, Section C, line 19 All information is available for public inspection at the organization's office. Form 990, Part IX, line 11g Outside services: Program service expenses 121,771. Management and general expenses 23,318. Fundraising expenses 113,998. Total expenses 259,087. Form 990, Part XI, line 9: Audit 2022 Restated Financials - Prior Period Adjustment -35,661. Form 990, Part XII, Line 2c There has been no change in either the audit oversight process or selection process during the tax year.