2024-08-26T10:15:41-05:00 2023-12-31 521544136 BORMEL GRICE & HUYETT PA 14409 GREENVIEW DR STE 201 LAUREL MD 207083293 990 2023-01-01 521350226 NATIONAL GAUCHER FOUNDATION INC NATI 8005043189 5410 EDSON LANE SUITE 220 ROCKVILLE MD 20852 BRIAN BERMAN PRESIDENT 8005043189 2024-08-26 1 0 LARRY P BORMEL CPA P00723627 3019533259 2023 2024-08-08 14:25:15Z BRIAN BERMAN 5410 EDSON LANE ROCKVILLE MD 20852 463859 0 X WWW.GAUCHERDISEASE.ORG X 1984 MD EMPOWER GAUCHER PATIENTS THROUGH FINANCIAL SUPPORT, EDUCATION, AND PATIENT/MEDICAL SERVICES. 3 3 2 0 0 0 1158055 449663 0 0 150 14196 0 0 1158205 463859 1125000 85000 0 0 243378 111474 0 0 4959 326875 470272 1695253 666746 -537048 -202887 934631 683972 49607 1835 885024 682137 RAISE FUNDS TO PROMOTE EDUCATION AND AWARENESS; MEET EVER-INCREASING NEEDS OF INDIVIDUALS WITH GAUCHER DISEASE AND THEIR FAMILIES. 0 0 85000 85000 85000 SUPPORT OF THE CARE PROGRAM, WHICH GRANTS FUNDS TO APPROXIMATELY 250 INDIVIDUALS, TO SUBSIDIZE, OR TO PURCHASE IN FULL, A HEALTH INSURANCE POLICY (PRIMARY, SECONDARY OR BOTH), TO WHICH THE PATIENT IS ENTITLED OR ELIGIBLE, BUT FOR WHICH THE PATIENT DOES NOT HAVE ADEQUATE PERSONAL RESOURCES TO ENROLL. 426421 EDUCATION AND AWARENESS INITIATIVES THROUGHOUT THE U.S. THE PROGRAM INCLUDES A WEBSITE WITH EXPANSIVE CONTENT THAT IS REGULARLY UPDATED, MONTHLY BLOG POSTS ON GAUCHER DISEASE FROM MEDICAL THOUGHT LEADERS, MONTHLY E-NEWSLETTERS, HUMAN INTEREST STORIES IN FILM, DIGITAL AND WRITTEN MATERIALS,AN ANNUAL EDUCATIONAL SYMPOSIUM FOR PATIENTS AND PHYSICIANS, A CARRIER SCREENING PROGRAM AS WELL AS SERVICES TO PATIENTS (WITH INFORMATION, SUPPORT,AND RESOURCES) TO HELP THEM ACHIEVE AND MAINTAIN THEIR OPTIMAL HEALTH. 511421 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 3 0 2 1 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 0 0 MD X BRIAN BERMAN 8005043189 5410 EDSON LANE SUITE 220 ROCKVILLE MD 20852 X BRIAN BERMAN PRESIDENT 8.00 X X 0 0 0 SAMANTHA RUBENSTEIN VICE PRESIDENT 2.00 X X 0 0 0 SAUL YANOVICH SECRETARY 2.00 X X 0 0 0 0 0 0 0 0 0 0 0 449663 449663 14196 14196 463859 0 0 14196 X 85000 85000 103454 64141 39313 8020 4972 3048 24602 24602 349515 349515 82603 1515 76184 4904 2523 2523 369 314 55 3755 3755 6905 6905 666746 511421 150366 4959 X 933102 682922 9843 9843 0 0 1529 1050 934631 683972 49607 1835 49607 1835 X 885024 682137 885024 682137 934631 683972 -202887 0 X 1 X 0 0 0 X 1781138 3228320 2238957 1158055 449663 8856133 1781138 3228320 2238957 1158055 449663 8856133 7503963 1352170 62563 23707 3579 150 14196 104195 8960328 0.15090 0.12970 X THE ORGANIZATION IS A NON-PROFIT ORGANIZATION WHICH SUPPORTS RESEARCH INTO THE CAUSES OF GAUCHER DISEASE AND THE DEVELOPMENT OF TREATMENTS AND AN EVENTUAL CURE, AND PROVIDES GRANTS, AND FUNDS THE NATIONAL GAUCHER CARE FOUNDATION WHICH SUPPORTS INDIVIDUAL GAUCHER PATIENTS IN HARDSHIP.THE ORGANIZATION PROVIDES EDUCATIONAL RESOURCES, SYMPOSIUMS AND A CONTINUAL TOLL-FREE MEDICAL HOTLINE. ALL PROGRAMS AND ALL FUNDRAISING ACTIVITIES ARE PERFORMED FOR THE BENEFIT OF THE GENERAL PUBLIC. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9843 9843 0 0 X PART X, LINE 2: THE ORGANIZATION ADOPTED FASB ASC 740-10, INCOME TAXES. IT PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN, OR EXPECTED TO BE TAKEN, IN A TAX RETURN AND PROVIDES GUIDANCE ON VARIOUS RELATED MATTERS SUCH AS DERECOGNITION, INTEREST, PENALTIES AND DISCLOSURES REQUIRED. THE ORGANIZATION RECOGNIZES INTEREST AND PENALTIES, IF ANY, RELATED TO UNRECOGNIZED TAX BENEFITS IN INCOME TAX EXPENSE. THE ADOPTION HAD NO IMPACT ON THE FINANCIAL STATEMENTS. THE ORGANIZATIONS' TAX RETURNS ARE SUBJECT TO POSSIBLE EXAMINATION BY THE TAXING AUTHORITIES. FOR FEDERAL AND STATE INCOME TAX PURPOSES THE TAX RETURNS ESSENTIALLY REMAIN OPEN FOR POSSIBLE EXAMINATION FOR A PERIOD OF THREE YEARS AFTER THE DATE ON WHICH THE RETURN IS FILED. 1 X X 0 0 0 0 0 0 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION ONLY HAS THREE GOVERNING BOARD MEMBERS WITHOUT ANY INDIVIDUAL COMMITTEES. FORM 990, PART VI, SECTION B, LINE 11B OFFICERS OF THE ORGANIZATION MEET TO REVIEW AND APPROVE THE 990 BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE CHIEF OPERATING OFFICER OF THE ORGANIZATION HAS THE BOARD MEMBERS DISCLOSE ANNUALLY ANY CONFLICTS OF INTEREST THAT MAY ARISE. FORM 990, PART VI, SECTION B, LINE 15A THE BOARD REVIEWS AND APPROVES THE CHIEF OPERATING OFFICER SALARY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G EDUCATIONAL AWARENESS- MARKETING : PROGRAM SERVICE EXPENSES 349,515. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 349,515. NATIONAL GAUCHER CARE FOUNDATION 5410 EDSON LANE SUITE 220 ROCKVILLE MD 208523106 521815708 FINANCIAL ASSISTANCE FOR MEDICAL EXPENSES RELATED TO GAUCHER DISEASE MD 501(C)(3) LINE 7 N/A 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 NATIONAL GAUCHER CARE FOUNDATION INC B CASH NATIONAL GAUCHER CARE FOUNDATION INC N CASH NATIONAL GAUCHER CARE FOUNDATION INC O CASH