2024-06-03T09:14:59-04:00 2023-12-31 341602442 H & J CERTIFIED PUBLIC ACCOUNTANTS INC 7555 FREDLE DR STE 110 CONCORD OH 44077 990 2023-01-01 223611011 PLATELET DISORDER SUPPORT ASSOCIATION PLAT 4407469003 8751 BRECKSVILLE RD BRECKSVILLE OH 44141 CAROLINE KRUSE PRESIDENT AND CEO 4407469003 2024-05-29 true CAROLINE KRUSE 999009999 true ROLLAND B STANDISH P00169705 4409512997 2024-05-29 2023 2023-04-26 12:10:37Z PETER PRUITT 8751 BRECKSVILLE RD NO 150 CLEVELAND OH 44141 2345345 false X WWW.PDSA.ORG X 1998 NJ PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT. 8 8 8 100 0 1681746 2171956 0 15724 136105 152858 22922 1850328 2330983 54000 56000 0 658001 729691 0 115116 501927 709609 1213928 1495300 636400 835683 5188299 6370055 372657 326447 4815642 6043608 X PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT. false false 1222399 56000 2023 WAS AN EXTREMELY BUSY YEAR FOR PDSA AS WE CELEBRATED THE ORGANIZATION'S 25TH ANNIVERSARY. IT WAS OUR GOAL TO ORGANIZE WITH OUR VOLUNTEERS 25 AWARENESS EVENTS, INCLUDING FUNDRAISERS AND NATIONAL WALK/RUN "PUMP IT UP FOR PLATELETS- AND WE REACHED THAT GOAL. OUR 62 LOCAL SUPPORT GROUPS HELD A TOTAL OF 73 MEETINGS AND TWO FACILITATOR WORKSHOPS. ITP CONFERENCE 2023 TOOK PLACE IN CHICAGO AND WAS OUR 3RD LARGEST CONFERENCE IN 23 YEARS WITH 285 ATTENDEES, FROM 15 COUNTRIES AND 30 STATES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH 1,098 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA HOSTED A WEBINAR WITH THE ITP SUPPORT ASSOCIATION IN THE UK AND TWO WORLD- RENOWNED ITP EXPERTS IN RECOGNITION OF GLOBAL ITP AWARENESS WEEK. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING AS PART OF ITP CONFERENCE 2023. FOURTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON PATIENT QUALITY OF LIFE WERE PRESENTED AT ASH, EHA (EUROPEAN HEMATOLOGY/ONCOLOGY ASSOCIATION) AND NORD. WE FUNDED FOUR INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2023. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH STAFF AND MEDICAL ADVISORS MEETING WITH DIRECTORS FROM THE DIVISION OF BLOOD DISORDERS AT BOTH THE NHLBI (NATIONAL HEART, LUNG AND BLOOD INSTITUTE) AND THE CDC (CENTERS FOR DISEASE CONTROL AND PREVENTION). WE ORGANIZED TWO HILL DAYS IN WASHINGTON, DC, MEETING WITH 26 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. DUE TO OUR EFFORTS, THE DEPARTMENT OF HEALTH AND HUMAN SERVICES INCLUDED ITP REPORT LANGUAGE IN SENATE APPROPRIATIONS BILL - A FIRST THIS MEANS THAT CONGRESS HAS RECOGNIZED THE IMPORTANCE OF GREATER AWARENESS FOR ITP. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS, COLLEGE SCHOLARSHIP PROGRAM, UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS, AND PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E- NEWSLETTER. 1222399 true true false false false false false false false false false false false false false true true false false true false false false false true false false true true true false false false false false false true false false false false false false false false false false true 1 0 true 8 true false false false false false false false false false false false false false false X 8 8 false false false false false false false true true false false true true true true true true true false false MD NJ IL CA NY WI OH FL PA VA WA MI NC KS X CAROLINE KRUSE 4407469003 8751 BRECKSVILLE RD NO 150 CLEVELAND OH 44141 CAROLINE KRUSE PRESIDENT AN 40.00 X 186730 0 19332 PETER PRUITT CHAIR 1.00 X X 0 0 0 KIM EVERETT TREASURER 1.00 X X 0 0 0 ROBERT FEINER DIRECTOR 1.00 X 0 0 0 MELISSA HILSABECK DIRECTOR 1.00 X 0 0 0 LINDA MCGUIRL DIRECTOR 1.00 X 0 0 0 DALE PAYNTER DIRECTOR 1.00 X 0 0 0 BRUCE PRESCOTT DIRECTOR 1.00 X 0 0 0 DEREK ZIMMERMAN DIRECTOR 1.00 X 0 0 0 186730 19332 1 false true false 148796 152893 1870267 2171956 136105 136105 15200 15200 9356 152893 9356 10432 5006 5426 5426 MISCELLANEOUS 2296 2296 2296 2330983 20626 138401 23000 23000 33000 33000 186730 158721 18637 9372 434472 296539 65884 72049 13085 9858 1577 1650 44707 31657 5816 7234 50697 35899 6595 8203 27514 27514 12624 12624 137356 131857 3843 1656 78278 60732 6311 11235 20575 16351 4224 30732 26785 2301 1646 38691 37267 119 1305 324251 324251 12426 12426 4842 3269 1573 EXHIBIT EXPENSES 16279 16279 SCHOLARSHIPS 3741 3741 STATE REG FEES 2300 767 767 766 1495300 1222399 157785 115116 665561 433303 4190799 1138829 277012 129925 7832 29364 4617227 47095 21407 5188299 6370055 140175 145780 232482 180667 372657 326447 X 4334064 5162009 481578 881599 4815642 6043608 5188299 6370055 X 835683 392283 X false true X true false X 1560511 1906196 1740329 1681746 2171956 9060738 1560511 1906196 1740329 1681746 2171956 9060738 3161393 5899345 14332 81014 74993 15724 136105 322168 6872 35595 11716 13168 11652 79003 9461909 71962 0.62350 0.54700 X PART II, LINE 10 MISC REVENUE 67,351 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 2750252 392283 26986 419269 2330983 2330983 1522286 26986 26986 1495300 1495300 SCHEDULE D, PAGE 3, PART X PDSA IS INCORPORATED AS A NOT-FOR-PROFIT THAT IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND IS NOT CONSIDERED A PRIVATE FOUNDATION UNDER SECTION 509(A)(1). PDSA CURRENTLY HAS NO UNRELATED BUSINESS INCOME. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. SCHEDULE D, PAGE 4, PART XI, LINE 2D COGS NET W/REV ON 990 5,006 DIRECT DONOR BENEFITS 9,356 INVESTMENT MGMT FEES 12,624 SCHEDULE D, PAGE 4, PART XII, LINE 2D COGS NET W/REV ON 990 5,006 DIRECT DONOR BENEFITS 9,356 INVESTMENT MGMT FEES 12,624 WALK/RUN EVENTS 162249 152893 9356 975 8381 162249 152893 9356 975 8381 9356 true UNIVERSITY OF WASHINGTON 1410 NE CAMPUS PKWY SEATTLE WA 98195 916001537 C3 20000 ITP RESEARCH 2 COLLEGE SCHOLARSHIPS 4 3000 DIRECT TO UNIV RESEARCH AWARDS 2 30000 SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION OFFERS SCHOLARSHIPS TO INDIVIDUALS WHO WISH TO ATTEND THE ORGANIZATION'S ANNUAL CONFERENCE. INDIVIDUALS WHO APPLY ARE CHOSEN BASED ON THEIR CONNECTION TO ITP OR ANOTHER PLATELET DISORDER, DESIRE TO ATTEND THE CONFERENCE, AS WELL AS THEIR NEED FOR FINANCIAL SUPPORT. THE PDSA COLLEGE SCHOLARSHIP PROGRAM PROVIDES FINANCIAL ASSISTANCE TO SENIOR HIGH SCHOOL STUDENTS, COLLEGE STUDENTS OR ADULTS INTERESTED IN CONTINUING EDUCAITON WHO ARE SUFFERING FROM ITP OR A SIMILAR INHERITED OR NON-INHERITED PLATELET DISORDER. THREE MONETARY AND FIVE BOOK SCHOLARSHIPS TOTALING 4,500 ARE AWARDED ANNUALY. SCHOLARSHIP RECIPENTS ARE SELECTED BY A PATIENT PANEL. IN 2016, PDSA ESTABLISHED RESEARCH GUIDELINES WITH THE GOAL OF FUNDING THE MOST PROMISING RESEARCH PROJECTS BY INVESTIGATORS TO FURTHER UNDERSTAND THE PATHOGENISIS AND MANAGEMENT OF PRIMARY ITP, HAVE THE POTENTIAL TO RAISE THE QUALITY OF LIFE FOR ITP PATIENTS, AND LEAD TO NEW THERAPIES AND A CURE. PROPOSALS MUST INCLUDE BUDGET AND USE OF FUNDS. TWO AWARDS OF 20,000 EACH ARE GIVEN ANNUALY. PROGRESS REPORTS ARE REQUIRED. RESEARCH FINDINGS IS PRESENTED AT THE ANNUAL ITP CONFERENCE. IN 2017, PDSA ESTABLISHED A RESEARCH PROGRAM TO SUPPORT EXCELLENCE IN ACADEMIC ITP RESEARCH FOR UNDERGRADUATES, MEDICAL OR GRADUATE STUDENTS INTERESTED IN THE LABORATORY OR CLINICAL STUDY OF IMMUNE THROMBOCYTOPENIA. ONE 10,000 SCHOLARSHIP IS AWARDED ANNUALLY. BOTH RESEARCH PROGRAMS ARE REVIEWED AND SELECTED BY A COMMITTEE COMPRISED OF PATIENTS AND PDSA MEDICAL ADVISORS. false false false false false false false false false CAROLINE KRUSE PRESIDENT AND CEO 159230 27500 19332 206062 ALEXANDRA KRUSE FAMILY MEMBER COMPENSATION false SCHEDULE L, PART V COMPENSATION TO ALEXANDRA KRUSE FOR RESEARCH ADVISORY SERVICES; DAUGHTER OF CAROLINE KRUSE, THE ORGANIZATION'S PRESIDENT AND CEO. FORM 990, PAGE 2, PART III, LINE 4A 2023 WAS AN EXTREMELY BUSY YEAR FOR PDSA AS WE CELEBRATED THE ORGANIZATION'S 25TH ANNIVERSARY. IT WAS OUR GOAL TO ORGANIZE WITH OUR VOLUNTEERS 25 AWARENESS EVENTS, INCLUDING FUNDRAISERS AND NATIONAL WALK/RUN "PUMP IT UP FOR PLATELETS- AND WE REACHED THAT GOAL. OUR 62 LOCAL SUPPORT GROUPS HELD A TOTAL OF 73 MEETINGS AND TWO FACILITATOR WORKSHOPS. ITP CONFERENCE 2023 TOOK PLACE IN CHICAGO AND WAS OUR 3RD LARGEST CONFERENCE IN 23 YEARS WITH 285 ATTENDEES, FROM 15 COUNTRIES AND 30 STATES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH 1,098 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA HOSTED A WEBINAR WITH THE ITP SUPPORT ASSOCIATION IN THE UK AND TWO WORLD- RENOWNED ITP EXPERTS IN RECOGNITION OF GLOBAL ITP AWARENESS WEEK. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING AS PART OF ITP CONFERENCE 2023. FOURTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON PATIENT QUALITY OF LIFE WERE PRESENTED AT ASH, EHA (EUROPEAN HEMATOLOGY/ONCOLOGY ASSOCIATION) AND NORD. WE FUNDED FOUR INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2023. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH STAFF AND MEDICAL ADVISORS MEETING WITH DIRECTORS FROM THE DIVISION OF BLOOD DISORDERS AT BOTH THE NHLBI (NATIONAL HEART, LUNG AND BLOOD INSTITUTE) AND THE CDC (CENTERS FOR DISEASE CONTROL AND PREVENTION). WE ORGANIZED TWO HILL DAYS IN WASHINGTON, DC, MEETING WITH 26 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. DUE TO OUR EFFORTS, THE DEPARTMENT OF HEALTH AND HUMAN SERVICES INCLUDED ITP REPORT LANGUAGE IN SENATE APPROPRIATIONS BILL - A FIRST THIS MEANS THAT CONGRESS HAS RECOGNIZED THE IMPORTANCE OF GREATER AWARENESS FOR ITP. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS, COLLEGE SCHOLARSHIP PROGRAM, UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS, AND PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E- NEWSLETTER. FORM 990, PAGE 6, PART VI, LINE 11B PRIOR TO FILING, THE FORM 990 IS PRESENTED TO THE EXECUTIVE DIRECTOR AND FINANCE STAFF FOR REVIEW AND APPROVAL. THE FORM 990 IS THEN ELECTRONICALLY DISTRIBUTED TO THE BOARD OF DIRECTORS IN ADVANCE OF FILING. A BOARD OFFICER SIGNS THE 990 (OR 8879-EO) AND THE 990 IS ELECTRONICALLY FILED. FORM 990, PAGE 6, PART VI, LINE 12C EACH YEAR, THE BOARD MEMBERS ARE ASKED TO REVIEW THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. AMONG OTHER THINGS, THE POLICY MAKES CLEAR THAT ALL DECISIONS OF THE BOARD, OFFICERS, AND EMPLOYEES OF THE ORGANIZATION ARE MADE SOLELY ON THE BASIS OF A DESIRE TO PROMOTE THE BEST INTEREST OF THE ORGANIZATION AND THE PUBLIC GOOD. THE CONFLICT OF INTEREST STATEMENT REQUESTS BOARD MEMBERS TO IDENTIFY TO THE BEST OF THEIR KNOWLEDGE AFFILIATIONS WITH ORGANIZATIONS THAT MAY BE POTENTIALLY RELATED TO THE FINANCIALS OR OTHER SUBSTANTIVE OPERATIONS OF THE ORGANIZATION. THEY ARE ALSO ASKED TO IDENTIFY CIRCUMSTANCES INVOLVING EITHER THEMSELVES, OR A MEMBER OF THEIR EXTENDED FAMILY, THAT MAY BE CONSTRUED AS A CONFLICT OF INTEREST. AT THE STAFF LEVEL, THE ORGANIZATION'S PERSONNEL ALSO ENSURE THAT THERE ARE NO CONFLICTS OF INTEREST WHEN CONSIDERING THE ENGAGEMENT OF A NEW VENDOR. IF A POTENTIAL CONFLICT IS IDENTIFIED, APPROPRIATE STEPS ARE TAKEN TO BOTH ASSESS THE NATURE OF THE POTENTIAL CONFLICT AND, SUBSEQUENTLY, TO ENSURE THAT THE POSSIBILITY OF AN ACTUAL CONFLICT IS MITIGATED. SUCH MITIGATION IS MANAGED AND THE LETTER AND SPIRIT OF THE CONFLICTS POLICY ARE UPHELD. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE ANNUALLY EVALUATES THE PERFORMANCE OF THE EXECUTIVE DIRECTOR. COMPENSATION IS BASED ON PERFORMANCE AND COMPARED TO OTHER AREA MISSION-COMPARABLE ORGANIZATIONS OF SIMILAR SIZE. COMPENSATION FOR STAFF WITHIN THE ORGANIZATION IS DETERMINED BY THE EXECUTIVE DIRECTOR. THE LEVEL OF COMPENSATION IS SET BASED ON PERFORMANCE AND IN RELATION TO OTHER AREA MISSION-COMPARABLE ORGANIZATIONS OF SIMILAR SIZE. THIS COMPENSATION IS A COMPONENT OF THE BUDGET, WHICH IS REVIEWED AND APPROVED BY THE FINANCE COMMITTEE AND ALSO BY THE BOARD AS A WHOLE. FORM 990, PAGE 6, PART VI, LINE 17 KANSAS FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, FORM 1023, FORM 990 CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. THE FORM 990, WITHOUT SCHEDULE B) CAN ALSO BE FOUND ON SEVERAL PUBLICLY-ACCESSIBLE WEBSITES. FORM 990, PART XI, LINE 9 COGS NET W/REV ON 990 5,006 DIRECT DONOR BENEFITS 9,356 INVESTMENT MGMT FEES 12,624 COGS NET W/REV ON 990 -5,006 DIRECT DONOR BENEFITS -9,356 INVESTMENT MGMT FEES -12,624