2024-05-31T14:38:03-05:00 2023-12-31 680232047 GHIRARDO CPA 7200 REDWOOD BLVD SUITE 403 NOVATO CA 94945 990EZ 2023-01-01 454020102 PCDH19 ALLIANCE PCDH 9252096307 926 A 212 DIABLO AVE NOVATO CA 94945 JULIE WALTERS BOARD PRESIDENT 9252096307 2024-05-31 1 JULIE WALTERS 999009999 1 MICHAEL DOMECUS P00280616 4158975678 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z X WWW.PCDH19INFO.ORG X X 42496 X 42496 42496 68000 0 40002 108002 -65506 107230 0 41724 107230 41724 107230 41724 0 0 107230 41724 X OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT. ATTEND THE UCSF SCIENTIFIC CONFERENCE TO EXHIBIT, NETWORK WITH PHYSICIANS AND RESEARCHERS IN ORDER TO PROMOTE PROPER DIAGNOSTIS, INTEREST NEW RESEARCHERS AND MEET WITH PHARMACEUTICAL COMPANIES INTERESTED IN DEVELOPING THERAPIES. 0 514 PROVIDED INFORMATION AND SUPPORT TO NEWLY DIAGNOSED FAMILIES. 0 320 TO PROVIDE FUNDS TO ORGANIZATION CONDUCTING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF PCDH19 EPILEPSY. 68000 X 68000 68834 JULIE WALTERS BOARD PRESIDENT 3.00 0 0 0 KARIN WELLS-KILPATRICK BOARD VICE PRESIDENT 2.00 0 0 0 JENNIFER HENDRIX HOLLAND BOARD SECRETARY 1.00 0 0 0 HEATHER FRYMAN BOARD MEMBER 1.00 0 0 0 CHRISTINE ROLLINS TREASURER 1.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA NANCY HROMALIK 7200 REDWOOD BLVD SUITE 403 NOVATO CA 94945 4155994637 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 97210 73830 110807 41709 42496 366052 97210 73830 110807 41709 42496 366052 366052 366052 5000 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID ACTIVITY CLASSIFICATION: RESEARCH GRANT. GRANTEE NAME: IRCCS BAMBINO GESU PEDIATRIC HOSPITAL. GRANTEE ADDRESS: PIAZZA S. ONOFRIO ROME, ROME, ITALY 4-00165. DATE OF GIFT: 04/14/23. AMOUNT GIVEN: 68,000. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: CONFERENCE COSTS. AMOUNT: 514. DESCRIPTION: LEGAL & PROFESSIONAL SERVICES. AMOUNT: 21,290. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 7,246. DESCRIPTION: DONATION FEES/EXPENSES. AMOUNT: 2,165. DESCRIPTION: INSURANCE. AMOUNT: 1,310. DESCRIPTION: BANK CHARGES & FEES. AMOUNT: 86. DESCRIPTION: TAXES & LICENSES. AMOUNT: 7,391. TOTAL TO FORM 990-EZ, LINE 16: 40,002. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.