2024-05-15T11:56:52-07:00 2023-12-31 811585294 CNRG Accounting Advisory LLC 1031 33rd St Denver CO 80205 990EZ 2023-01-01 810960162 Turner Syndrome Colorado TURN 7207589038 11269 Lamar St Westminster CO 80020 Xan Davidson Treasurer 2024-05-15 true Xan Davidson 999009999 true Chyla Graham P02016884 8449322674 0 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z X X N/A X X 13467 X 13467 0 0 0 0 13467 10000 566 4121 14687 -1220 32004 30784 32004 30784 32004 30784 32004 30784 The organization's mission is to connect individuals and families in the Turner Syndrome community and create and support loca resources including a Turner Syndrome clinic porgram. In 2023, Turner Syndrome Colorado continued to provide resources and person-to-person support to girls, women, and families living with Turner syndrome (TS). We created five opportunities for families to connect, including our first in-person indoors educational meeting since COVID. Fun activities to build community included a painting party, a baseball game, our annual pool party, and a corn maze gathering. At each event, individuals with TS and their families benefitted from connecting with others and learning from and supporting each other. In collaboration with the eXtraOrdinary Kids Turner Syndrome Clinic at Childrens Hospital CO, TS Colorado hosted a half day Family Conference in April. This included multiple presentations and attendees included individuals with TS, family members, physicians, and medical interns. TS Colorado continues to provide the Clinic with financial support and to work collaboratively with the Clinic Team to ensure that the patient communitys needs are met. In addition, TS Colorado supported research on TS by promoting the InsighTS Registry through participation on a Community Advisory Board and recruiting families to participate in the Anxiety Research project. The community has been active in directing the goals of this project and TS Colorado continues to provide communication on outcomes. TS Colorado Board members made personal connections with families through emails and responding to social media inquiries. We maintain an active social media presence to share information about Turner syndrome and connect the community, with 680 (up from 550 in 2022) followers on Facebook. We have 225 Colorado families on our email list, which we use to send newsletters periodically and to highlight events. 12117 12117 Erika Haag Director 3.00 0 Marybel Good Treasurer 3.00 0 Laura Maugel Director 1.00 0 Amanda Scrabeck Director 0.25 0 Jessica Budahn Director 0.25 0 Kelsey Smith President 3.00 0 Karen Regan Director 1.00 0 Isani Singh Director 0.25 0 Deidre Lock Director 0.50 0 false false false false false false false 0 0 0 false 0 0 false Xan Davidson 6080 Virgil St Arvada CO 80403 7207589038 false false false false false false false false false false false NONE NONE true X 65957 2672 34998 89269 13467 206363 0 0 65957 2672 34998 89269 13467 206363 0 206363 0 0 0 206363 1.00000 1.00000 X Grants and Similar Amounts Paid In Excess of $5,000.1 | Donee's Name: Children's Hospital CO Fnd | Donee's Address: 13123 E 16th Ave Box 045 Aurora CO 80045 | Cash Amount Given: $10000 Other Expenses.1002 Office Expenses $68 Other Expenses.1007 Conferences, Conventions, and Meetings $975 Other Expenses.1012 Insurance $637 Other Expenses.1 Annual Walk $1300 Other Expenses.2 Research Expenses $872 Other Expenses.3 Other Program Expenses $269