2024-05-14T13:09:41-05:00 2023-06-30 331029526 Smith Financial Services PLLC 2302 Hurstbourne Village Dr Ste 200 Louisville KY 40299 990 2022-07-01 610656750 Kentucky Hemophilia Foundation Inc KENT 5024563233 1850 Taylor Avenue 2 Louisville KY 40213 Ursela Kamala Executive Director 5024563233 2024-05-12 1 Ursela Kamala 999009999 0 David L Smith P00118653 5028822708 2024-05-11 X 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z Ursela Kamala 1850 Taylor Avenue 2 Louisville KY 40213 339280 0 X www.kyhemo.org X 1960 KY To provide eduction and empowerment concerning the treatment of bleeding disorders. 9 7 2 105 4904 0 113204 261916 94047 778 172 3578 36309 19128 243732 285400 0 0 0 0 87395 102576 0 0 15013 124289 160885 211684 263461 32048 21939 647242 649057 72144 52020 575098 597037 X The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure. 0 0 2812 Advocacy Day is an annual event at the state capitol to educate legislators about the needs and concerns of Kentucky's bleeding disorders community and emphasize the need for patient assistance programs and the importance of access to health care. 10791 The annual Family Information and Support Day at the Louisville Zoo provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support. 21552 See Schedule O 173644 941 173644 941 208799 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 2 1 1 1 0 0 0 0 0 0 0 0 0 X 9 7 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 KY X X The Organization 5024563233 1850 Taylor Avenue 2 Louisville KY 40213 Laura Webb President of board 1.00 X X 0 0 0 Eric Marcum Vice-president of board 1.00 X X 0 0 0 Travis Price Board member 1.00 X 0 0 0 Patrick Dunegan Board member 1.00 X 0 0 0 Jennifer Dunegan Board member 1.00 X 0 0 0 Roeland A Hartmans Secretary of board 1.00 X X 0 0 0 Mason Stout Board member 1.00 X 0 0 0 Kristin Taylor Treasurer of board 1.00 X X 0 0 0 Aisha Irvin Board member 1.00 X 0 0 0 Ursela Kamala Executive Director 40.00 X 77210 0 2316 77210 0 2316 0 0 0 0 0 3485 41861 42658 173912 261916 Miscellaneous programs 900099 778 778 778 3578 3578 61267 41861 49615 11652 11652 6674 4265 2409 2409 Advertising 541800 4904 4904 Miscellaneous 900099 163 163 5067 285400 941 4904 17639 82467 66798 8247 7422 12362 9972 1258 1132 541 439 54 48 7206 5872 702 632 18450 18450 1937 1569 194 174 2424 2405 9 10 24332 17362 3495 3475 5344 4329 534 481 1381 1118 138 125 4678 3789 469 420 5609 3345 1892 372 Direct program expenses 85237 85237 Bank & credit card fees 3905 469 3383 53 Membership fees 3093 2453 376 264 Equpment rental & maint 2723 2206 271 246 1772 1436 177 159 263461 208799 39649 15013 43495 45905 476381 475828 15808 18519 18487 20413 196191 107799 93071 88392 647242 649057 16188 23654 55956 28366 72144 52020 X 559872 572374 15226 24663 575098 597037 647242 649057 21939 0 X 0 1 X 1 0 X 234498 153837 145549 111109 261916 906909 234498 153837 145549 111109 261916 906909 422411 484498 2808 1198 161 172 3578 7917 20206 1841 22047 148226 45208 68211 65849 72845 400339 1337212 183981 0.36230 0.36610 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 1 2812 0 0 2812 0 Part II-B, Line 1: The Kentucky Hemophilia Foundation holds an annual advocacy day at the state capitol to express the needs and concerns of our bleeding disorders community to legislators and/or their designees. Patients and caregivers are encouraged to participate. The primary focus is on access to health care. 155066 67488 87578 41125 40311 814 88392 X 339280 53880 53880 285400 0 285400 317341 53880 53880 263461 0 263461 Part X, Line 2: Management believes that it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements. There have not been any penalties or interest recorded or accrued in the financial statements. Part XI, Line 2d - Other Adjustments: Direct fundraising expenses reported on Part VIII, line 8b Direct fundraising expenses reported on Part VIII, line 9b Part XII, Line 2d - Other Adjustments: Direct fundraising expenses reported on Part VIII, line 8b Direct fundraising expenses reported on Part VIII, line 9b Hemophilia Walk 29861 29861 9145 Golf Scramble 26695 6000 20695 9096 2813 3 46572 6000 40572 4396 2718 21447 103128 41861 61267 13492 2718 33405 49615 11652 Form 990, Part III, Line 4c Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active youngsters "just like any other kids" while learning to manage their bleeding disorder or learn about their sibling's bleeding disorder. The mission of the summer camp is to improve knowledge, attitudes, and behavorial skills of children with hemophilia or a similar bleeding disorder as well as accompanying siblings who do not have a bleeding disorder for developing a healthy, risk-reduced lifestyle. The goals of the summer camp program are to: 1. combine life skills education with outdoor adventure and fun for the development of self-esteem, confidence, team-building, and leadership skills through age and gender appropriate activities; 2. promote physical emotional, and mental wellness; 3. advocate risk-reducing behavior for optimal child development and prevention of complications for each child with a bleeding disorder. Part III, Line 4d---Other program service accomplishments Expenses: 50,082 The Annual Education Meeting and Summer Family Event is our largest yearly education event, which features several nationally known speakers who address topics pertinent to the bleeding disorders community in the realm of research advances, new and future treatment options as well as overall well-being. The Year-End Community Event provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support. Expenses: 123,562 Support Services include emergency financial assistance, Medic Alert emblems, bicycle helmets, post-secondary education scholarships, sponsorships for attending conferences, educational seminars, web site, newsletter, other support services, and allocation of overhead to programs. Form 990, Part VI, Section A, line 2 Two board members are married to each other. Form 990, Part VI, Section B, line 11b Form 990 is reviewed by the Executive Director and is made available to other executive committee members. Form 990, Part VI, Section B, line 12c Conflict of interest policies are provided to board members on an annual basis and monitored by Executive Director Form 990, Part VI, Section B, line 15a The consideration for an increase in the Executive Director's compensation occurs during the annual budget process. Performance is evaluated on an ongoing basis by reviewing program participation; program outcomes; and program development. The Executive Director submits an activities report to the board of directors at each board meeting. Form 990, Part VI, Section C, line 19 Governing documents and financial statements are made available upon request.