2024-05-14T09:11:08-04:00 2023-12-31 582026697 LONG & COMPANY PC 1325 SATELLITE BLVD NW STE 1504 SUWANEE GA 300244662 990EZ 2023-01-01 880953568 OUR FRIEND CHRISTOPHER MEMORIAL CHARITIES INC OURF 6786140635 5942 WILD RIVER VIEW SUGAR HILL GA 30518 MICHELE MILES PRESIDENT 6786140635 2024-05-13 true MICHELE MILES 999009999 true WILLIAM E LONG JR CPA P00171899 6783274382 2024-05-13 2023 2023-04-26 12:10:37Z X OURFRIENDCHRISTOPHER.COM X X 42223 X 34302 7921 7921 34302 17000 945 900 6235 25080 9222 49375 58597 49375 58597 49375 58597 49375 58597 X THE OUR FRIEND CHRISTOPHER CHARITIES MISSION IS TO HONOR OUR FRIEND CHRISTOPHER MILES BY IMPROVING AND INSPIRING THE LIVES OF PEDIATRIC CANCER PATIENTS AND YOUNG ADULTS IN OUR COMMUNITY. WE HAVE THREE MAIN PROGRAMS IN WHICH WE SERVE OUR COMMUNITY: PATIENT SUPPORT, AWARENESS AND RESEARCH AND HIGHER EDUCATION. BRAIN CANCER RESEARCH, AWARENESS & ADVOCACY: A LARGE PART OF IMPROVING AND INSPIRING THE LIVES OF PEDIATRIC AND BRAIN CANCER PATIENTS AND YOUNG ADULTS IN OUR COMMUNITY IS BY FUNDING CRITICAL AND TIME SENSITIVE RESEARCH THAT IMPROVES THE QUALITY AND QUANTITY OF LIFE, RAISING BRAIN CANCER AWARENESS, AND ADVOCATING FOR CHANGE. THERE ARE OVER 120 DIFFERENT TYPES OF BRAIN CANCER THAT AFFECT CHILDREN AND ADULTS IN OUR NATION. GLIOBLASTOMA BRAIN CANCER IS THE MOST COMPLEX, TREATMENT RESISTANT AND DEADLIEST OF ALL MALIGNANT BRAIN CANCERS WITH A PROGNOSIS OF ONLY 12 18 MONTHS FROM DIAGNOSIS. SADLY, BRAIN CANCERS ALSO AFFECT QUALITY OF LIFE. MOBILITY FUNCTIONS LIKE WALKING, TALKING, SEEING, AND SPEAKING BECOME IMPAIRED. THERE HAS BEEN LITTLE ADVANCEMENT IN THERAPIES THAT IMPACT THE QUALITY AND QUANTITY OF LIFE OF A GLIOBLASTOMA BRAIN CANCER PATIENT. FOR THESE REASONS, WE ARE FOCUSED ON ELIMINATING THE CHALLENGES OF THIS CANCER AND CONTINUE TO ELEVATE PARTNERSHIPS WITH EXPERTS AND ORGANIZATIONS THAT WORK TO ELIMINATE THE CHALLENGES OF MALIGNANT BRAIN CANCERS LIKE GLIOBLASTOMA. IN 2023, 13,5000 IN GRANTS WERE MADE TOWARDS CRITICAL RESEARCH FOR IMMUNOTHERAPIES AND EARLY DETECTION TO IMPROVE THE QUALITY AND QUANTITY OF LIFE FOR A MALIGNANT BRAIN TUMOR PATIENT. IN 2023, WE CONTINUED TO RAISE AWARENESS WITH OUR CONGRESSIONAL LEADERS AND COMMUNITY PARTNERS ABOUT THE DEVASTATING EFFECTS OF MALIGNANT BRAIN CANCER AND CONTINUE TO ASK FOR INCREASED ANNUAL FUNDING FOR RESEARCH. WE ARE ENCOURAGED THAT WE HAVE A BIPARTISAN COMMITMENT TO ADVANCING INSTRUMENTAL POLICIES, RESEARCH, AND TREATMENT DEVELOPMENT. AS A RESULT, OVERALL (NCI) NATIONAL CANCER INSTITUTE FUNDING DIRECTED TOWARDS BRAIN CANCER HAS INCREASED FROM 3% IN 2019 TO 8% IN 2023. WE CONTINUE TO REQUEST INCREASED ANNUAL FUNDING AND ACTION WHICH INCLUDE IN PART: FUNDING 50 MILLION ANNUALLY FOR THE NCI GLIOBLASTOMA THERAPEUTICS NETWORK AND INCREASED OVERALL BRAIN CANCER FUNDING. PASSAGE OF THE ACCELERATING KIDS ACCESS TO CARE ACT (HR. 4358/S2372) THAT WOULD REQUIRE STATE MEDICAID PROGRAMS TO HAVE A PROCESS FOR ENABLING OUT OF STATE PROVIDERS TO PARTICIPATE SO THAT CHILDREN WITH TERMINAL BRAIN CANCER WHO MUST GO OUT OF STATE TO ACCESS ADEQUATE SPECIALIZE CANCER CARE ARE ABLE TO DO SO WITHIN MEDICAID. PASSAGE FOR THE STOP THE WAIT ACT (HR. 6583/S3575) WHICH WOULD PHASE OUT THE 5-MONTH WAITING PERIOD FOR A TERMINALLY ILL BRAIN CANCER PATIENT TO RECEIVE SOCIAL SECURITY DISABILITY INSURANCE BENEFITS. CONTINUE RESOLUTIONS DESIGNATING JULY 17TH GLIOBLASTOMA DAY AND MAY AS BRAIN CANCER AWARENESS MONTH AND FOR CONGRESS TO PARTICIPATES IN THE ACTIVITIES DRIVEN BY THE ADVOCATE COMMUNITY TO BRING ABOUT AWARENESS FOR GLIOBLASTOMA AND ALL BRAIN CANCERS. PATIENT SUPPORT: IMPROVING AND INSPIRING THE LIVES OF YOUNG PATIENTS BATTLING BRAIN CANCER IS CRITICAL TO THEIR QUALITY OF LIFE. PATIENT SUPPORT CAN RANGE FROM HELPING FAMILIES WITH MEDICAL EXPENSES FOR THERAPIES NOT COVERED BY INSURANCE, TRAVEL EXPENSES, TO SUPPORTING FAMILY CHRISTMAS CHEER DURING THIS DIFFICULT TIME. IN 2023, OUR FRIEND CHRISTOPHER WAS ABLE TO SUPPORT OVER 100 HOSPITALIZED CHILDREN WITH SPECIAL OVERNIGHT PACKAGES MAKING THEIR STAY MORE COMFORTABLE AND CAREFREE. IN 2023, WE MADE ONLY ONE ADDITIONAL GRANT TO A CHILD BATTLING BRAIN CANCER VS. FIVE IN 2022. HOWEVER, WE WERE ALSO ABLE TO CONTINUE TO PROVIDE SUPPORT FOR THREE OF OUR ORIGINAL FAMILIES WHO LOST THEIR CHILD TO BRAIN CANCER. SCHOLARSHIP PROGRAM: OUR FRIEND CHRISTOPHER PROVIDES COLLEGE SCHOLARSHIPS TO DESERVING YOUNG ADULTS IN OUR COMMUNITY TO HONOR OUR FRIEND, CHRISTOPHER MILES, WHO FINISHED HIS BATTLE WITH GLIOBLASTOMA BRAIN CANCER IN 2020. IN 2023 OUR FRIEND CHRISTOPHER CONTINUED TO IMPROVE AND INSPIRE THE LIVES OF YOUNG ADULTS IN OUR COMMUNITY BY AWARDING 3 SCHOLARSHIPS TO DESERVING YOUNG INDIVIDUALS WHO DEMONSTRATE LEADERSHIP, COMMUNITY, AND THE ABILITY TO OVERCOME ADVERSITY. A TOTAL OF 9 SCHOLARSHIPS HAVE BEEN AWARDED IN TOTAL. 4714 4714 MICHELE MILES PRESIDENT 3.00 0 BARBARA DOTSON CFO 1.00 0 DARCEY PUCCIARELLO SECRETARY 1.00 0 BLAKE DOTSON DIRECTOR 1.00 0 TAYLOR KNOXX DIRECTOR 1.00 0 JOSHUA MILES DIRECTOR 1.00 0 ZACH MOLLETTE DIRECTOR 1.00 0 NICK PUCCIARELLO DIRECTOR 1.00 0 JARED REISMAN DIRECTOR 1.00 0 BRYSON SCRUGGS DIRECTOR 1.00 0 CONNER SMALLS DIRECTOR 1.00 0 IAN DUNNE DIRECTOR 1.00 0 false false false false false false false false false GA MICHELE MILES 5942 WILD RIVER VIEW SUGAR HILL GA 30518 6786140635 false false false false false false false false false false false NONE NONE true X 64925 34302 99227 15699 7921 23620 80624 42223 122847 122847 80624 42223 122847 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED LEDGEND PARTY 20644 14090 6554 6554 VOLLEYBALL TOUR 15369 14002 1367 1367 36013 28092 7921 7921 7921 FORM 990-EZ, PART I, LINE 16 EXPENSES ADVERTISING AND PROMOTION 105 CONFERENCES/MEETINGS 539 FILING FEES 50 FUNDRAISING EXPENSES 116 OTHER EXPENSES 461 PATIENT SUPPORT/DONATIONS 4,714 SUPPLIES 250 TOTAL 6,235 FORM 990-EZ, PART III THE OUR FRIEND CHRISTOPHER CHARITIES MISSION IS TO HONOR OUR FRIEND CHRISTOPHER MILES BY IMPROVING AND INSPIRING THE LIVES OF PEDIATRIC CANCER PATIENTS AND YOUNG ADULTS IN OUR COMMUNITY. WE HAVE THREE MAIN PROGRAMS IN WHICH WE SERVE OUR COMMUNITY: PATIENT SUPPORT, AWARENESS AND RESEARCH AND HIGHER EDUCATION. FORM 990-EZ, PART III, LINE 28 BRAIN CANCER RESEARCH, AWARENESS & ADVOCACY: A LARGE PART OF IMPROVING AND INSPIRING THE LIVES OF PEDIATRIC AND BRAIN CANCER PATIENTS AND YOUNG ADULTS IN OUR COMMUNITY IS BY FUNDING CRITICAL AND TIME SENSITIVE RESEARCH THAT IMPROVES THE QUALITY AND QUANTITY OF LIFE, RAISING BRAIN CANCER AWARENESS, AND ADVOCATING FOR CHANGE. THERE ARE OVER 120 DIFFERENT TYPES OF BRAIN CANCER THAT AFFECT CHILDREN AND ADULTS IN OUR NATION. GLIOBLASTOMA BRAIN CANCER IS THE MOST COMPLEX, TREATMENT RESISTANT AND DEADLIEST OF ALL MALIGNANT BRAIN CANCERS WITH A PROGNOSIS OF ONLY 12 18 MONTHS FROM DIAGNOSIS. SADLY, BRAIN CANCERS ALSO AFFECT QUALITY OF LIFE. MOBILITY FUNCTIONS LIKE WALKING, TALKING, SEEING, AND SPEAKING BECOME IMPAIRED. THERE HAS BEEN LITTLE ADVANCEMENT IN THERAPIES THAT IMPACT THE QUALITY AND QUANTITY OF LIFE OF A GLIOBLASTOMA BRAIN CANCER PATIENT. FOR THESE REASONS, WE ARE FOCUSED ON ELIMINATING THE CHALLENGES OF THIS CANCER AND CONTINUE TO ELEVATE PARTNERSHIPS WITH EXPERTS AND ORGANIZATIONS THAT WORK TO ELIMINATE THE CHALLENGES OF MALIGNANT BRAIN CANCERS LIKE GLIOBLASTOMA. IN 2023, 13,5000 IN GRANTS WERE MADE TOWARDS CRITICAL RESEARCH FOR IMMUNOTHERAPIES AND EARLY DETECTION TO IMPROVE THE QUALITY AND QUANTITY OF LIFE FOR A MALIGNANT BRAIN TUMOR PATIENT. IN 2023, WE CONTINUED TO RAISE AWARENESS WITH OUR CONGRESSIONAL LEADERS AND COMMUNITY PARTNERS ABOUT THE DEVASTATING EFFECTS OF MALIGNANT BRAIN CANCER AND CONTINUE TO ASK FOR INCREASED ANNUAL FUNDING FOR RESEARCH. WE ARE ENCOURAGED THAT WE HAVE A BIPARTISAN COMMITMENT TO ADVANCING INSTRUMENTAL POLICIES, RESEARCH, AND TREATMENT DEVELOPMENT. AS A RESULT, OVERALL (NCI) NATIONAL CANCER INSTITUTE FUNDING DIRECTED TOWARDS BRAIN CANCER HAS INCREASED FROM 3% IN 2019 TO 8% IN 2023. WE CONTINUE TO REQUEST INCREASED ANNUAL FUNDING AND ACTION WHICH INCLUDE IN PART: FUNDING 50 MILLION ANNUALLY FOR THE NCI GLIOBLASTOMA THERAPEUTICS NETWORK AND INCREASED OVERALL BRAIN CANCER FUNDING. PASSAGE OF THE ACCELERATING KIDS ACCESS TO CARE ACT (HR. 4358/S2372) THAT WOULD REQUIRE STATE MEDICAID PROGRAMS TO HAVE A PROCESS FOR ENABLING OUT OF STATE PROVIDERS TO PARTICIPATE SO THAT CHILDREN WITH TERMINAL BRAIN CANCER WHO MUST GO OUT OF STATE TO ACCESS ADEQUATE SPECIALIZE CANCER CARE ARE ABLE TO DO SO WITHIN MEDICAID. PASSAGE FOR THE STOP THE WAIT ACT (HR. 6583/S3575) WHICH WOULD PHASE OUT THE 5-MONTH WAITING PERIOD FOR A TERMINALLY ILL BRAIN CANCER PATIENT TO RECEIVE SOCIAL SECURITY DISABILITY INSURANCE BENEFITS. CONTINUE RESOLUTIONS DESIGNATING JULY 17TH GLIOBLASTOMA DAY AND MAY AS BRAIN CANCER AWARENESS MONTH AND FOR CONGRESS TO PARTICIPATES IN THE ACTIVITIES DRIVEN BY THE ADVOCATE COMMUNITY TO BRING ABOUT AWARENESS FOR GLIOBLASTOMA AND ALL BRAIN CANCERS. PATIENT SUPPORT: IMPROVING AND INSPIRING THE LIVES OF YOUNG PATIENTS BATTLING BRAIN CANCER IS CRITICAL TO THEIR QUALITY OF LIFE. PATIENT SUPPORT CAN RANGE FROM HELPING FAMILIES WITH MEDICAL EXPENSES FOR THERAPIES NOT COVERED BY INSURANCE, TRAVEL EXPENSES, TO SUPPORTING FAMILY CHRISTMAS CHEER DURING THIS DIFFICULT TIME. IN 2023, OUR FRIEND CHRISTOPHER WAS ABLE TO SUPPORT OVER 100 HOSPITALIZED CHILDREN WITH SPECIAL OVERNIGHT PACKAGES MAKING THEIR STAY MORE COMFORTABLE AND CAREFREE. IN 2023, WE MADE ONLY ONE ADDITIONAL GRANT TO A CHILD BATTLING BRAIN CANCER VS. FIVE IN 2022. HOWEVER, WE WERE ALSO ABLE TO CONTINUE TO PROVIDE SUPPORT FOR THREE OF OUR ORIGINAL FAMILIES WHO LOST THEIR CHILD TO BRAIN CANCER. SCHOLARSHIP PROGRAM: OUR FRIEND CHRISTOPHER PROVIDES COLLEGE SCHOLARSHIPS TO DESERVING YOUNG ADULTS IN OUR COMMUNITY TO HONOR OUR FRIEND, CHRISTOPHER MILES, WHO FINISHED HIS BATTLE WITH GLIOBLASTOMA BRAIN CANCER IN 2020. IN 2023 OUR FRIEND CHRISTOPHER CONTINUED TO IMPROVE AND INSPIRE THE LIVES OF YOUNG ADULTS IN OUR COMMUNITY BY AWARDING 3 SCHOLARSHIPS TO DESERVING YOUNG INDIVIDUALS WHO DEMONSTRATE LEADERSHIP, COMMUNITY, AND THE ABILITY TO OVERCOME ADVERSITY. A TOTAL OF 9 SCHOLARSHIPS HAVE BEEN AWARDED IN TOTAL.