2024-03-04T12:53:52-06:00 2023-06-30 390859910 BAKER TILLY US LLP 1000 COMMERCE PARK DR WILLIAMSPORT PA 17701 990 2022-07-01 463616405 COALITION AGAINST CHILDHOOD CANCER COAL 2158886524 PO BOX 41913 PHILADELPHIA PA 19101 STEVEN L PESSAGNO TREASURER 2158886524 2024-02-28 1 STEVEN PESSAGNO 999009999 1 JAIME L KUNTZ CPA P01272711 5703236023 2024-02-28 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z VICTORIA BUENGER PHD PO BOX 41913 PHILADELPHIA PA 19101 285483 0 X WWW.CAC2.ORG X 2013 PA COLLABORATIVE NETWORK TO SUPPORT & SERVE THE CHILDHOOD CANCER COMMUNITY. 13 13 2 200 0 0 154296 285417 0 0 67 66 0 0 154363 285483 0 0 0 0 71495 56418 0 0 16581 118615 190842 190110 247260 -35747 38223 230898 269242 0 121 230898 269121 X COALITION AGAINST CHILDHOOD CANCER (CAC2) IS A COLLABORATIVE NETWORK OF ORGANIZATIONS AND INDIVIDUALS WHO SUPPORT AND SERVE THE CHILDHOOD CANCER COMMUNITY. CONTINUED ON SCHEDULE O.THE MISSION OF CAC2 IS TO FOSTER AND SUSTAIN GREATER LEVELS OF COORDINATED ACTION, INFORMATION EXCHANGE, LEARNING, AND BROAD-BASED COLLABORATION THROUGH AGREED-UPON INITIATIVES IN FOUR AREAS: RESEARCH AND TREATMENT, FAMILY SUPPORT AND SURVIVORSHIP, AWARENESS BUILDING, AND ADVOCACY. CAC2 WORKS TO BENEFIT THE CHILDHOOD CANCER COMMUNITY - INCLUDING BOTH ITS MEMBERSHIP AND CHILDHOOD CANCER PATIENTS, SURVIVORS, AND THEIR FAMILIES - THROUGH GREATER LEVELS OF COORDINATED ACTION THAT LEVERAGE THE UNIQUE STRENGTHS AND EXPERTISE OF ITS MEMBERS, MINIMIZING WASTE OF PRECIOUS RESOURCES IN ORDER TO DRIVE BETTER OUTCOMES FOR CHILDHOOD CANCER PATIENTS AND THEIR FAMILIES. 0 0 163689 0 0 CAC2 MARKED ITS 10TH YEAR OF SERVICE TO THE CHILDHOOD CANCER COMMUNITY THIS YEAR. DURING THAT TIME, CHILDHOOD CANCER SURVIVAL RATES HAVE IMPROVED, SUPPORT SERVICES HAVE EXPANDED, AND ADVOCACY EFFORTS HAVE STRENGTHENED. THROUGHOUT ITS 2022-2023 FISCAL YEAR, CAC2 CONTINUED TO DELIVER ON ITS MISSION IN ITS CORE AREAS OF SERVICE TO THE CHILDHOOD CANCER COMMUNITY.RESEARCH & TREATMENT CAC2 DEVELOPED THE PAIR WORKSHOP TO ESTABLISH STANDARDS AND PRINCIPLES FOR PEDIATRIC ONCOLOGY DRUG DEVELOPMENT THAT DRIVE MEANINGFUL AND ETHICAL INTERACTIONS BETWEEN PAOS AND PHARMACEUTICAL COMPANIES. CONTINUED ON SCHEDULE O.IN ADDITION, CAC2 CONTINUES TO PARTICIPATE IN THE INTERNATIONAL CANCER RESEARCH PARTNERSHIP, COLLABORATING TO PROVIDE FUNDING DATA IN A CENTRAL REPOSITORY OF PEDIATRIC CANCER RESEARCH STUDIES. THIS TOOL HELPS ASSESS FUNDING PRIORITIES, IDENTIFY GAPS, AND RAISE AWARENESS FOR CHILDHOOD CANCER RESEARCH PROJECTS. FINALLY, CAC2 MEMBERS ATTENDED CONFERENCES GLOBALLY, INCLUDING THE CHILDREN'S BRAIN TUMOR NETWORK SCIENTIFIC SUMMIT, BRAINSTORM SUMMIT, SIOP ANNUAL CONGRESS, ACCELERATE ANNUAL CONFERENCE, AND THE PAEDIATRIC STRATEGY FORUM ON DNA DAMAGE REPAIR INHIBITORS.ATTENDEES WERE ABLE TO LEARN FROM EACH OTHER AND NETWORK TOGETHER.ADVOCACY & AWARENESS - THE CAC2 STATE CANCER INITIATIVE PROGRESSED WITH THE STATE CANCER ACTION PLAN DATA AND TOOLKIT THAT ORGANIZES ADVOCATES, DATA, AND RESOURCES FOR COLLABORATION AT THE STATE LEVEL. IN ADDITION, WE HARNESSED OUR COLLECTIVE STRENGTH TO ADVOCATE AND RAISE AWARENESS FOR THE NEEDS OF THE CHILDHOOD CANCER COMMUNITY THROUGH SUPPORT FOR AND PASSAGE OF PRESIDENT BIDEN'S PROCLAMATION OF SEPTEMBER 2022 AS NATIONAL CHILDHOOD CANCER AWARENESS MONTH; SUPPORT FOR, PASSAGE OF, AND TOTAL FUNDING FOR THE REAUTHORIZATION OF THE CHILDHOOD CANCER STAR ACT FOR ANOTHER FIVE YEARS; SUPPORT FOR AND PASSAGE BY THE HOUSE OF REPRESENTATIVES MILLION DOLLAR MISSION HR 623 GABRIELLA MILLER KIDS FIRST RESEARCH ACT 2.0, ACTION DAYS 2023; INTERNATIONAL CHILDHOOD CANCER DAY (ICCD); THE NCI CCDI ANNUAL SYMPOSIUM; INTRODUCTION OF THE COMPREHENSIVE CANCER SURVIVORSHIP ACT; AND MULTIPLE SIGN-ON OPPORTUNITIES. ON MAY 25, 2023, THE WHITE HOUSE CONVENED LEADERS FROM THE BRAIN CANCER COMMUNITY FOR A GLIOBLASTOMA AND DIPG FORUM. ON SEPTEMBER 23, 2022, IN COORDINATION WITH CUREFEST 2022 ACTIVITIES, THE OFFICE OF SCIENCE AND TECHNOLOGY POLICY HOSTED THE WHITE HOUSE CANCER MOONSHOT: CHILDHOOD CANCER FORUM. SEVERAL CAC2 MEMBERS ATTENDED THESE GATHERINGS AND WERE ABLE TO CONNECT WITH ONE ANOTHER.FAMILY SUPPORT & SURVIVORSHIP - THE SURVIVORSHIP INTEREST GROUP'S IMPACTFUL WORK INCLUDED THE BETTER TOGETHER SURVIVORSHIP CONNECTION (BTSC) AND PRE-LAUNCH WORK ON THE SURVIVORSHIP TOOLKIT. BTSC CONNECTS CHILDHOOD CANCER SURVIVORS, PARENTS, CAREGIVERS, FAMILY MEMBERS, NONPROFIT ORGANIZATIONS, PROFESSIONALS, AND OTHER STAKEHOLDERS TO A FREE DATABASE OF ORGANIZATIONS THAT PROVIDE PROGRAMS, SERVICES, AND OTHER TYPES OF ASSISTANCE FOR CHILDHOOD AND ADOLESCENT CANCER SURVIVORS. THE SURVIVORSHIP TOOLKIT WILL FEATURE SIX CATEGORIES: EDUCATIONAL GUIDANCE AND PLANNING; INSURANCE AND FINANCIAL HEALTH; MANAGING PHYSICAL HEALTH AND LATE EFFECTS; PSYCHOSOCIAL/EMOTIONAL HEALTH/WELLBEING; TRANSITIONING TO ADULTHOOD; AND WELLNESS/HEALTHY BEHAVIORS. CAC2 ALSO OFFERED MONTHLY INTEREST GROUP DROP-IN MEETINGS AND REVAMPED THE HOPE PORTAL AND CHILDHOOD CANCER FACT LIBRARY.CONNECT & LEARN - CAC2 PROVIDED ROBUST EDUCATIONAL OUTREACH THROUGH OUR WEBINAR SERIES AND BY ENHANCING OPPORTUNITIES FOR OUR MEMBERS TO EXCHANGE INFORMATION AND BEST PRACTICES. FOREMOST AMONG THESE EFFORTS IS THE CAC2 ANNUAL SUMMIT. THE CAC2 WEBINAR SERIES FEATURED SEVEN OFFERINGS. TOPICS INCLUDED MEET & GREETS, MAKE YOUR VOICE HEARD ALLIANCE FOR CHILDHOOD CANCER ACTION DAYS 2023, PEDIATRIC CANCER ADVOCACY FROM YOUR OWN BACKYARD, NOT FOR PROFIT FINANCIAL MATTERS: A DEEP DIVE INTO THE 990, NOT FOR PROFIT FINANCIAL MATTERS, HEARING LOSS FROM CISPLATIN MULTIPLE PERSPECTIVES ON THE NEW FDA PREVENTATIVE TREATMENT OPTION, AND WHY SHOULD FOUNDATIONS COLLABORATE TO FUND RESEARCH AND HOW THE FOUNDATION MATCH PLATFORM CAN HELP. THE CAC2 BLOG SERIES FEATURED NINE POSTS: THANKFUL AND FEARFUL, MOLECULAR CHARACTERIZATION INITIATIVE (MCI) CONTINUES TO ENROLL, CELEBRATING THE INTRODUCTION OF THE COMPREHENSIVE CANCER SURVIVORSHIP ACT, SAVE THE DATE! ACTION DAYS 2023 RETURNS TO WASHINGTON, D.C., CHILDHOOD CANCER DATA INITIATIVE WELCOMES DR. GREGORY REAMAN AS ITS NEW SCIENTIFIC DIRECTOR, THE FIT FOR FILING GROUP AT ACCELERATE, NEW FDA DRAFT GUIDANCE AIMS TO PROTECT CHILDREN WHO PARTICIPATE IN CLINICAL TRIALS, NATIONAL CANCER INSTITUTE'S CCDI MOLECULAR CHARACTERIZATION INITIATIVE ADDS RARE TUMORS, AND NATIONAL CANCER INSTITUTE LAUNCHES THE CCDI MOLECULAR TARGETS PLATFORM.THE 2023 CAC2 ANNUAL SUMMIT, HOSTED AT CHILDREN'S HOSPITAL OF ATLANTA, BROUGHT TOGETHER APPROXIMATELY 110 MEMBERS AND GUESTS TO SET PRIORITIES FOR COLLABORATIVE PROJECTS. A SPECIAL CELEBRATION DINNER MARKED CAC2'S 10TH ANNIVERSARY DURING THE SUMMIT. 163689 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 2 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI DC X X STEVEN L PESSAGNO TREASURER 2158886524 700 S CLIFTON STREET PHILADELPHIA PA 191471978 AMY GODKIN CHAIR 15.00 X X 0 0 0 AMY WEINSTEIN PAST CHAIR 10.00 X X 0 0 0 ANGELA LEE DIRECTOR AND NATIONAL ADVOCACY LIAISON 5.00 X 0 0 0 ANN RAMER DIRECTOR AND STATE ADVOCACY LIAISON 5.00 X 0 0 0 CAITLIN BARRETT DIRECTOR AND RESEARCH LIAISON 5.00 X 0 0 0 GINGER DIAMOND DIRECTOR AND HOSPITALITY LEAD 5.00 X 0 0 0 GINNY MCCLEAN DIRECTOR AND PROJECT AND CAMPAIGN OVERSIGHT LEAD 10.00 X 0 0 0 JEREMY BLILER DIRECTOR AND TECHNOLOGY LEAD 10.00 X 0 0 0 KIM MACNEILL DIRECTOR AND MEMBERSHIP LIAISON 5.00 X 0 0 0 LORI EARL DIRECTOR AND FAMILY SUPPORT LIAISON 5.00 X 0 0 0 MARIAH FORSTER OLSON SECRETARY AND SURVIVORSHIP LIAISON 10.00 X 0 0 0 ROBIN FRENCH DIRECTOR AND WEBINAR LEAD/NOMINATING LEAD 5.00 X 0 0 0 SARAH BARTOSZ VICE CHAIR AND LEADERSHIP DEVELOPMENT LEAD 5.00 X X 0 0 0 STEVEN L PESSAGNO TREASURER, EX-OFFICIO 10.00 X X 0 0 0 VICTORIA BUENGER PHD PRESIDENT EMERITUS, EX-OFFICIO 30.00 X X 0 0 0 MANDY SPIELVOGLE POWELL MANAGING DIRECTOR (UNTIL 12/22) 40.00 X 67804 0 0 MELISSA JACKSON EXECUTIVE DIRECTOR (AS OF 4/23) 40.00 X 0 0 0 67804 0 0 0 0 0 0 0 98550 186867 285417 66 66 285483 0 0 66 52103 35430 16673 4315 4315 11750 11750 2589 2589 8224 8224 23339 23339 6726 6726 COLLABORATION INITIATIV 108693 108693 GRANT DEVELOPMENT 16581 16581 WEBSITE / MEMBER HUB 12840 12840 MEMBERSHIP 100 100 247260 163689 66990 16581 5582 23545 224707 245697 609 0 230898 269242 0 121 0 121 X 159608 74526 71290 194595 230898 269121 230898 269242 38223 0 X 1 X 0 1 0 X 102897 120118 228031 154296 285417 890759 102897 120118 228031 154296 285417 890759 143672 747087 283 312 122 67 66 850 891609 0.83790 0.87530 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE SHALL BE COMPOSED OF THE OFFICERS OF THE CORPORATION. THE EXECUTIVE COMMITTEE SHALL BE AUTHORIZED TO ACT FOR THE BOARD BETWEEN ITS REGULAR MEETINGS. EXCEPT AS OTHERWISE PROVIDED BY THESE BYLAWS OR BY RESOLUTION OF THE BOARD, THE EXECUTIVE COMMITTEE SHALL HAVE AND MAY EXERCISE ALL OF THE POWERS AND AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE CORPORATION. FORM 990, PART VI, SECTION A, LINE 6 THE CORPORATION SHALL HAVE TWO CLASSES OF VOTING MEMBERS (THE "VOTING MEMBERS"), DENOTED AS ORGANIZATION MEMBERS AND INDIVIDUAL MEMBERS. THE CORPORATION SHALL ALSO HAVE THREE CLASSES OF NON-VOTING MEMBERS (THE "NON-VOTING MEMBERS"), DENOTED AS ASSOCIATE MEMBERS, STUDENT MEMBERS, AND SUPPORTING MEMBERS. TO BE ELIGIBLE FOR MEMBERSHIP AS AN ORGANIZATION MEMBER, AN ENTITY MUST BE (A) A CHILDHOOD CANCER ORGANIZATION OR COALITION, OR (B) A NONPROFIT, TAX-EXEMPT ORGANIZATION WITH A PRIMARY INTEREST IN CHILDHOOD CANCER ISSUES. ORGANIZATION MEMBERS SHALL APPOINT A REPRESENTATIVE TO ATTEND MEETINGS OF THE MEMBERS AND VOTE THEREIN (THE ORGANIZATION REPRESENTATIVE") BY PROVIDING WRITTEN NOTICE OF THE APPOINTMENT TO THE CORPORATION. EACH INDIVIDUAL MEMBER SHALL BE A NATURAL PERSON AT LEAST 18 YEARS OF AGE WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. TO BE ELIGIBLE FOR MEMBERSHIP AS AN INDIVIDUAL MEMBER, AN INDIVIDUAL MUST NOT BE SERVING CURRENTLY ON THE BOARD OF DIRECTORS OR ON THE PAID STAFF OF ANY ORGANIZATION MEMBER. INDIVIDUALS WHO ARE INELIGIBLE TO BE INDIVIDUAL MEMBERS BECAUSE THEY ARE EITHER CURRENTLY ON THE BOARD OF DIRECTORS OR ON THE PAID STAFF OF AN ORGANIZATION MEMBER ARE ELIGIBLE FOR MEMBERSHIP AS AN ASSOCIATE MEMBER. EACH ASSOCIATE MEMBER SHALL BE A NATURAL PERSON AT LEAST 18 YEARS OF AGE WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. TO BE ELIGIBLE FOR MEMBERSHIP AS A STUDENT MEMBER, AN INDIVIDUAL MUST BE A STUDENT WITH CURRENT AND VALID STUDENT IDENTIFICATION CREDENTIALS. EACH STUDENT MEMBER SHALL BE A NATURAL PERSON WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. NONPROFIT AND FOR-PROFIT ORGANIZATIONS THAT DO NOT QUALIFY AS ORGANIZATION MEMBERS SHALL BE ELIGIBLE FOR MEMBERSHIP AS SUPPORTING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A THE BOARD SHALL CONSIST OF NO FEWER THAN SEVEN (7) AND NO MORE THAN TWENTY-ONE (21) PERSONS, DIVIDED INTO THREE EQUAL CLASSES. THE TERM OF OFFICE OF ONE CLASS SHALL EXPIRE ON THE 30TH DAY OF JUNE IN EACH YEAR. EACH CLASS SHALL BE ELECTED BY THE VOTING MEMBERS ENTITLED TO ELECT DIRECTORS FOR TERMS OF THREE (3) YEARS, EXCEPT IN CASE OF A VACANCY IN ANY CLASS, IN WHICH CASE THE VACANCY SHALL BE FILLED FOR THE BALANCE OF THE TERM OF SUCH CLASS. FORM 990, PART VI, SECTION A, LINE 7B MEMBERS VOTE ON AND EITHER APPROVE OR REJECT COLLABORATIVE PROJECT APPROVALS. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD MEMBERS RECEIVE A COPY OF THE DRAFT AND ARE GIVEN TIME TO REVIEW AND ASK QUESTIONS BEFORE THE RETURN IS FINALIZED. FORM 990, PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST POLICY IS HANDED OUT AND SIGNED BY EVERY BOARD MEMBER ANNUALLY AT THE JUNE BOARD MEETING. THE SECRETARY WILL COLLECT ALL SIGNED STATEMENTS FOR FILE. FORM 990, PART VI, SECTION B, LINE 15A CAC2 ESTABLISHED A LEADERSHIP TRANSITION PLANNING TEAM THAT LED THE IMPLEMENTATION FOR CHANGES TO THE ORGANIZATIONAL STRUCTURE OF CAC2, INCLUDING THE SEARCH, RECRUITMENT, AND HIRING OF THE MANAGING DIRECTOR. THE TEAM ESTABLISHED A SEARCH COMMITTEE SPECIFICALLY FOCUSED ON THE MANAGING DIRECTOR ROLE; THAT COMMITTEE UTILIZED BENCHMARKS FOR NON-PROFIT ORGANIZATIONS BOTH WITHIN AND EXTERNAL TO THE CHILDHOOD CANCER COMMUNITY TO SET THE SALARY RANGE FOR THE POSITION. THE COMMITTEE LOOKED AT SALARIES FOR ROLES SUCH AS EXECUTIVE DIRECTOR, OPERATIONS DIRECTORS, AND PROJECT DIRECTORS, AS THE RESPONSIBILITIES FOR THE CAC2 MANAGING DIRECTOR ROLE CONSTITUTED A HYBRID OF SUCH ROLES. FINALLY, THE COMMITTEE LOOKED AT GEOGRAPHIC DIFFERENCES IN SALARY RANGES. THE SEARCH COMMITTEE MADE RECOMMENDATIONS ON THE SALARY RANGE AND THE SALARY FOR THE SELECTED CANDIDATE TO THE LEADERSHIP TRANSITION PLANNING TEAM, WHICH, IN TURN, CONFIRMED THE RECOMMENDATIONS FOR REFERRAL TO THE BOARD OF DIRECTORS FOR FINAL DECISION-MAKING. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.