2024-02-15T17:10:28-06:00 2023-06-30 510229493 BARBACANE THORNTON & COMPANY LLP 503 CARR ROAD SUITE 100 WILMINGTON DE 198092863 990 2022-07-01 516018401 EPILEPSY FOUNDATION OF DELAWARE EPIL 3029999313 527 STANTON CHRISTIANA ROAD NEWARK DE 19713 CHRISTY POOLE PRESIDENT 3029999313 2024-02-15 CHRISTY POOLE 999009999 0 JEFFREY A KOWALCZYK CPA P01563311 3024788940 2024-02-15 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z CHRISTY POOLE 527 STANTON CHRISTIANA ROAD NEWARK DE 19713 224769 0 X WWW.EFDE.ORG X 1964 DE THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY. 12 12 5 37 0 0 108734 118409 11000 23855 224 224 67250 72545 187208 215033 0 0 0 0 128007 147184 0 0 24187 46237 54025 174244 201209 12964 13824 367970 401181 6141 22756 361829 378425 X THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY. 0 0 158892 23855 THE EPILEPSY FOUNDATION OF DELAWARE IS A PRIVATE, NON-PROFIT ORGANIZATION THAT PROVIDES PROGRAMS AND SERVICES TO INDIVIDUALS AND FAMILIES AFFECTED WITH EPILEPSY AND SEIZURE DISORDERS AND THE GENERAL COMMUNITY THROUGHOUT THE STATE OF DELAWARE. WE HAVE TWO GENERAL TYPES OF SERVICES WE PROVIDE: INFORMATION AND SUPPORT, AND TRAINING AND OUTREACH.INFORMATION AND SUPPORT-DIRECT SUPPORT FOR INDIVIDUALS WITH EPILEPSY OR WHO HAVE A LOVED ONE WITH EPILEPSY. WE HELP WITH QUESTIONS ABOUT MEDICATIONS, TRANSPORTATION, WORK, DISABILITY, ETC. OVER 216 SERVED IN THIS PROGRAM. -MEET AND GREET SUPPORT GROUPS ARE HELD TWICE PER MONTH (VIA ZOOM AND IN PERSON) AND HAVE 10-15 ATTENDEES EACH GROUP-PROJECT UPLIFT IS OUR OVER THE PHONE SKILL BASED PROGRAM FOR ADULTS WITH EPILEPSY. IT IS 8 WEEKS LONG AND COMBINES CBT (COGNITIVE BEHAVIORAL THERAPY) SKILLS WITH MINDFULNESS. WE CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES (IT IS ONLY FOR SMALL GROUPS)-PACES IS ALSO AN OVER THE PHONE SMALL GROUP PROGRAM TEACHING PEOPLE WITH EPILEPSY SKILLS ON HOW TO MANAGE MEDICATIONS, TALK TO THEIR DOCTOR, AND LIVE THEIR BEST LIVES. WE ALSO CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES.TRAINING AND OUTREACH-TEENS-THIS IS A SEIZURE FIRST AID AND AWARENESS PROGRAM FOR TEENS IN SCHOOL HEALTH CLASSES. WE TRAINED 334 TEENS.-SCHOOL PERSONNEL- WE TRAINED 217 SCHOOL PERSONNEL (INCLUDING EARLY CHILDHOOD EDUCATORS) ON SEIZURE FIRST AID IN THE CLASSROOM. -LAW ENFORCEMENT-WE TRAINED 173 LAW ENFORCEMENT RECRUITS ON HOW TO IDENTIFY AND PROPERLY PROVIDE AID TO INDIVIDUALS HAVING SEIZURES-MEDICAL/OTHER-WE TRAINED 152 MEDICAL PROFESSIONALS, CAMP COUNSELORS AND OTHERS WHO ASKED TO KNOW HOW TO HELP SOMEONE HAVING A SEIZURE-SEIZURE FIRST AID-THIS IS A NATIONAL CERTIFICATION PROGRAM AND VAL IS A CERTIFIED INSTRUCTOR ON THE NATIONAL LEVEL. WE HAVE ALSO PROVIDED LOCAL SEIZURE FIRST AID CERTIFICATION AND OFFERED THIS TO ALL THE GROUPS ABOVE. IN ADDITION TO THE NUMBERS ABOVE, WE HAVE CERTIFIED 700 DELAWAREANS IN SEIZURE FIRST AID.-DELAWARE EPILEPSY CONFERENCE-WE HAD 86 PARTICIPANTS REGISTER FOR A HYBRID IN PERSON/VIRTUAL EPILEPSY EDUCATION CONFERENCE. 158892 1 1 0 0 0 0 0 0 0 0 1 1 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 5 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 X X MANAGEMENT 3029999313 527 STANTON-CHRISTIANA ROAD NEWARK DE 19713 CHRISTY POOLE PRESIDENT 2.00 X X 0 0 0 RON CHARNIGO VICE PRESIDENT 1.00 X X 0 0 0 CASEY CURET SECRETARY 1.00 X X 0 0 0 TOM JOSIAH TREASURER 1.00 X X 0 0 0 KATHY NEAL PHD BOARD MEMBER 2.00 X 0 0 0 ANN HELBE BOARD MEMBER 1.00 X 0 0 0 MICHAEL J BROWN BOARD MEMBER 1.00 X 0 0 0 S CHARLES BEAN MD BOARD MEMBER 1.00 X 0 0 0 KIMBERLY MURPHY BOARD MEMBER 1.00 X 0 0 0 JOHN R POLLARD MD BOARD MEMBER 2.00 X 0 0 0 TERESA CRISAFULLI BOARD MEMBER 1.00 X 0 0 0 SARAH HINKLE BOARD MEMBER 1.00 X 0 0 0 VAL BUDISCHAK EXECUTIVE DIRECTOR 37.50 X 63906 0 0 63906 0 0 0 0 0 0 0 2696 70366 45347 118409 PROGRAM INCOME 624100 23855 23855 23855 224 224 82281 9736 72545 72545 215033 23855 0 72769 63906 51125 4473 8308 72395 57916 5068 9411 10883 8706 762 1415 8375 6700 586 1089 1050 840 74 136 5771 5375 350 46 7423 5939 445 1039 13986 11190 979 1817 3754 3004 375 375 345 276 21 48 2859 2287 172 400 DUES 9650 4825 4825 MISCELLANEOUS 675 675 MERCHANT FEES 137 34 103 201209 158892 18130 24187 77444 87885 224627 224831 17870 17737 478 133 65013 67785 408 20547 367970 401181 6141 2617 0 20139 6141 22756 X 361829 378425 361829 378425 367970 401181 13824 2772 0 X X 0 1 X 1 0 X 118423 128062 126587 108734 118409 600215 118423 128062 126587 108734 118409 600215 600215 810 4163 1130 224 224 6551 55588 45201 44128 67250 72545 284712 891478 80740 0.67330 0.67440 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17870 17737 133 133 ENDOWMENT FUND 67785 F 67785 RENT DEPOSIT 408 RIGHT OF USE LEASE ASSET 20139 20547 LEASE LIABILITY 20139 20139 X 217805 2772 2772 215033 0 215033 201209 0 201209 0 201209 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ORGANIZATION'S TAX-EXEMPT PURPOSE MAY BE SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PRESCRIBE RULES FOR THE RECOGNITION, MEASUREMENT, CLASSIFICATION AND DISCLOSURE IN THE FINANCIAL STATEMENTS OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE ORGANIZATION'S TAX RETURNS. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS OR ASSOCIATED UNRECOGNIZED BENEFITS THAT MATERIALLY IMPACT THE FINANCIAL STATEMENTS OR RELATED DISCLOSURES. SINCE TAX MATTERS ARE SUBJECT TO SOME DEGREE OF UNCERTAINTY, THERE CAN BE NO ASSURANCE THAT THE ORGANIZATION'S TAX RETURNS WILL NOT BE CHALLENGED BY THE TAXING AUTHORITIES AND THAT THE ORGANIZATION WILL NOT BE SUBJECT TO ADDITIONAL TAX, PENALTIES AND INTEREST AS A RESULT OF SUCH CHALLENGE. RUN/WALK 47254 47254 2214 SPRING GALA 23210 23210 4414 1 11123 11123 2318 81587 81587 8946 8946 72641 FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE ORGANIZATION'S 990 IS REVIEWED BY THE FINANCE COMMITTEE, WHICH THEN MAKES A RECOMMENDATION TO THE BOARD TO APPROVE IT. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST IS MONITORED PER THE WRITTEN CONFLICT OF INTEREST POLICY. OFFICERS, DIRECTORS AND KEY EMPLOYEES ARE REQUIRED TO SUBMIT IN WRITING WHETHER OR NOT THERE ARE KNOWN CONFLICTS OF INTEREST EACH FISCAL YEAR. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S COMPENSATION IS DETERMINED BY THE BOARD OF DIRECTORS. THE BOARD OF DIRECTORS DOCUMENTS ITS DELIBERATION AND DECISION IN ADMINISTRATIVE RECORDS. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES FORM 990 AND FORM 1023 AVAILABLE UPON REQUEST. ADDITIONALLY, FORM 990 IS AVAILABLE ON GUIDESTAR.ORG. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE ORGANIZATION'S PROCESS GOVERNING OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT AUDITOR, MANAGED BY THE FINANCE COMMITTEE, HAS NOT CHANGED FROM THE PRIOR YEAR.