2022-09-14T13:23:01-05:00 2021-12-31 760269860 Blazek & Vetterling 2900 Weslayan Suite 200 Houston TX 77027 990 2021-01-01 383850833 IBC Network Foundation IBCN 2817975578 PO Box 908 Sealy TX 77474 Terry Arnold Chair 2817975578 2022-09-14 1 Terry Arnold 999009999 Barbara Murphy P01386215 7134395739 3 AAL1 IAL1 2021 2023-04-26 12:10:37Z Terry Arnold PO Box 908 Sealy TX 77474 225370 0 X www.theibcnetwork.org X 2011 TX The IBC Network Foundation funds Inflammatory Breast Cancer research and gives proactive education. 3 3 0 100 0 0 130302 225370 0 0 0 0 0 0 130302 225370 57985 147800 0 0 7740 0 0 0 18694 54774 74554 120499 222354 9803 3016 68707 71723 0 0 68707 71723 X The IBC Network Foundation funds research for Inflammatory Breast Cancer and provides proactive education to the general public and the medical community regarding Inflammatory Breast Cancer. 0 0 189829 147800 See Schedule O 189829 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 X X Terry Arnold 2817975578 1014 FM 2187 Sealy TX 77474 X Terry Arnold Chair 40.00 0.00 X X 0 0 0 Laurie Main Treasurer 2.00 0.00 X X 0 0 0 Virginia Finn-Lenhardt Secretary 1.00 0.00 X X 0 0 0 0 0 0 0 0 0 0 0 225370 225370 225370 0 0 0 147800 147800 2225 2225 8468 8468 2647 1324 1323 4225 1860 2365 33974 26885 7089 3492 3492 1967 1967 Event expenses 17371 17371 Dues and subscriptions 185 185 222354 189829 13831 18694 68707 71723 68707 71723 0 0 X 0 0 0 0 68707 71723 68707 71723 68707 71723 3016 0 X 0 0 0 X 326993 334094 346643 130302 225370 1363402 326993 334094 346643 130302 225370 1363402 2732 1360670 1363402 0.99800 0.99870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 Duke University PO Box 90581 Durham NC 27708 746001118 501(c)(3) 37500 0 Research support Vanderbilt-Ingram Cancer Center 691 Preston Building Nashville TN 37232 620476822 501(c)(3) 100000 0 Ballco Lab Grant 2 0 Part I, Line 2: The IBC board members maintain close contact with grant recipients to monitor research progress and clinical outcomes. Form 990, Part III, Line 4a The IBC Network Foundation is intensely focused on funding high-quality research regarding inflammatory breast cancer and triple negative breast cancer. Inflammatory breast cancer is an orphaned form of breast cancer, due to its rareness and high fatally rate. Typically striking younger women, at a late stage presentation, 30% of the women are also diagnosed with triple negative. This combination is highly difficult to treat successfully. In 2021, we funded three times for two different projects and offered matching grants to two major IBC centers. This year at Ingrid-Vanderbilt, we have continued to fund an ongoing project of $100,000 for the researcher, Justin Balko, and his team for the study of how triple-negative and IBC interrelate. This year at Duke University, we completed funding with the donation of $37,500 to support Gayathri Devi, Ph.D., Program Director, Duke Consortium for IBC, and her team's research in the area of developing models to characterize inflammatory breast cancer metastasis to the brain. This year we offered two matching grants of $5,000 each to Dana Farber and MD Anderson Cancer Center for their respective IBC programs for their institution fundraising challenges. Since we have been unable to have physical meetings to help assist patients, we have been hosting a series of Zoom calls, Zoom Across the USA, to help patients who are living with IBC be better connected to the best possible research and care options. We are especially proud to have completed the drafting of the course for the IBC Learning Academy. This course was written in cooperation with MD Anderson's Morgan Welch Clinic for Inflammatory Breast Cancer. The course was offered in real time and is now available online for interested parties to take worldwide. The course is offered at no cost. It is known that rare disease advocacy can improve patient outcomes while bridging the gap between patients/caregivers, healthcare providers, policymakers, and the scientific community. Our goal is to reach a diverse target audience of patients and professionals with a passion for improving the lives of those affected by IBC. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying. Advocates may also serve on decision-making boards of local, state, and national organizations, committees, and Institutional Review Boards. We have had over 50 people complete the course. Form 990, Part VI, Section B, line 11b Terry Arnold, Chair and Laurie Main, Treasurer review the Form 990 prepared by the CPA before filing. Form 990, Part VI, Section C, line 19 No other documents are available to the public.