2022-09-15T12:06:50-05:00 2021-12-31 042571780 AAFCPAS INC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2021-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2022-08-09 1 DAVID ARONS XXX-XX-XXXX JOHN BUCKLEY CPA P00830631 5083669100 2022-08-09 3 AAL1 IAL1 2021 2023-04-26 12:10:37Z X DAVID ARONS 55 CHAPEL STREET 006 NEWTON MA 02458 11832317 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 20 20 46 29340 0 0 8855708 11743049 0 0 75517 33433 0 0 8931225 11776482 968121 2720431 0 0 4180836 4247282 0 0 799660 2004248 1980711 7153205 8948424 1778020 2828058 10033142 13088308 1478031 1701739 8555111 11386569 X NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 3310721 2720431 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORYHAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THEADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVETEAM-SCIENCE INITIATIVES INCLUDING PROJECTS IN OUR DEFEAT BRAIN TUMORS PROGRAM PORTFOLIO DESIGNED TO TRANSLATE DISCOVERIES INTO TRANSFORMATIVE MEDICAL BREAKTHROUGHS FOR ADULTS AND CHILDREN WITH BRAIN TUMORS. OUR "DEFEAT" PROGRAM BRINGS TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND PARTNERSHIPS WITH INDUSTRY. NBTS BRAIN TUMOR INVESTMENT FUND CATALYZES THE BRAIN TUMOR BIOTECH AND BIOPHARMA SPACE BRIDGING PROMISING ACADEMIC RESEARCH TO MOVE INTO INDUSTRIAL DEVELOPMENT. THE NBTS' RESEARCH ROUNDTABLE PROGRAM CONVENES STAKEHOLDERS TO TAKE ON BARRIERS AND OPPORTUNITIES TO BRAIN TUMOR TREATMENT DEVELOPMENT. 665341 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLICPOLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WEADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERALINVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 3545362 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPINGPATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIMEOF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, PERSONALIZED SUPPORT AND NAVIGATION FOR PATIENTS AND GROUP SUPPORT PROGRAMS, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 7521424 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 30 0 1 46 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X DOROTHY WHALEN CFO 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 40.00 X 257815 0 32395 LAUREN HALL CDO 40.00 X 232657 0 6012 KIRK TANNER CSO 40.00 X 194033 0 12979 ASHLEY BRENNAN EXECUTIVE DIRECTOR, PEER-TO-PEER FUNDRAISING 40.00 X 161438 0 30063 KEVIN JEANS ASSISTANT CHIEF DEVELOPMENT OFFICER AND NATIONAL F 40.00 X 185535 0 168 KATIE GERMAIN SR. DIRECTOR OF COMMUNICATIONS 40.00 X 137342 0 10626 KENNETH TROSHINSKY CFO (AS OF 6/2021) 40.00 X 117975 0 8228 STEVEN GALLUCCI CFO (UNTIL 1/2021) 40.00 X 37899 0 4835 TOM ROLOFF CHAIR 2.00 X X 0 0 0 ROBERT BURGER VICE CHAIR 1.00 X X 0 0 0 DAVE BROWN TREASURER 1.00 X X 0 0 0 LIZ SALMI CLERK 1.00 X X 0 0 0 DAVID DONABEDIAN BOARD MEMBER 1.00 X 0 0 0 ERIC OLSON PHD BOARD MEMBER 1.00 X 0 0 0 DR EVANTHIA GALANIS BOARD MEMBER 1.00 X 0 0 0 ROBERT CORRAO BOARD MEMBER 1.00 X 0 0 0 SALO ZELERMYER JD BOARD MEMBER 1.00 X 0 0 0 ERICA BURKE BOARD MEMBER 1.00 X 0 0 0 RYAN LANG BOARD MEMBER 1.00 X 0 0 0 ALLISON BISHOF BOARD MEMBER 1.00 X 0 0 0 DR EDJAH NDUOM BOARD MEMBER 1.00 X 0 0 0 MICHAEL SMITH BOARD MEMBER 1.00 X 0 0 0 DR JOOHEE SUL BOARD MEMBER 1.00 X 0 0 0 CORIE YUTKIN BOARD MEMBER 1.00 X 0 0 0 ADAM HAYDEN BOARD MEMBER 1.00 X 0 0 0 MIL PAREKH BOARD MEMBER 1.00 X 0 0 0 LEAH RECHT JD BOARD MEMBER 1.00 X 0 0 0 KABIR SETHI BOARD MEMBER 1.00 X 0 0 0 1324694 0 105306 14 0 1 0 BRACEWELL LLP 2001 M STREET NW SUITE 900 WASHINGTON DC 200363310 GOVERNMENT RELATIONS 115000 1 5042005 1482821 5218223 11743049 46779 46779 42489 55835 -13346 -13346 -13346 0 5042005 0 0 11776482 0 0 33433 2720431 2720431 459147 358868 45917 54362 3242072 2510613 208843 522616 66672 51597 4237 10838 195639 167336 11873 16430 283752 219951 19421 44380 48698 48698 41100 41100 148750 148750 2040 2040 286920 213120 63063 10737 121190 115567 803 4820 29973 20339 5930 3704 332522 273380 29521 29621 260618 143340 78185 39093 11520 10101 795 624 4377 2407 1313 657 31915 17817 9288 4810 SPECIAL EVENTS 508499 431339 39562 37598 TECHNOLOGY 93339 72133 9157 12049 DUES AND SUBSCRIPTIONS 31404 27230 583 3591 TRAINING AND RECRUITING 27223 16982 6511 3730 623 123 500 8948424 7521424 627340 799660 3009210 4149587 5050537 6106765 256700 569167 618247 884526 184531 124681 109063 22250 9359 86813 869348 860569 219381 86819 35210 0 10033142 13088308 253149 310687 500000 700000 25000 699882 691052 1478031 1701739 X 3431389 6730462 5123722 4656107 8555111 11386569 10033142 13088308 2828058 3400 0 X X 0 1 X 1 0 X 10249779 11269569 14128145 8855708 11743049 56246250 10249779 11269569 14128145 8855708 11743049 56246250 56246250 17938 28476 33770 66897 46779 193860 56440110 0.99660 0.99680 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 243345 243345 8705079 8948424 597421 149355 0 0 596789 578379 507660 597421 2280249 3420374 222954 308751 477918 243345 1252968 149197 144595 126915 149355 570062 855093 565448 565448 565448 565448 508547 56901 565448 315448 193099 508547 312104 3344 315448 0.96680 0.03320 0 0 109063 22250 86813 86813 X 11799236 3400 21394 24794 11774442 2040 2040 11776482 8967778 21394 21394 8946384 2040 2040 8948424 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2021 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2021. WALK - RACE FOR HOPE -DC 1407238 1407238 2021 FALL CHALLENGE 996828 996828 3 2637939 2637939 5042005 5042005 1 UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 208 W FRANKLIN STREET CHAPEL HILL NC 27516 566001393 501 (C) 3 750000 0 RESEARCH GLOBAL COALITION FOR ADAPTIVE RESEARCH 1661 MASSACHUSETTS AVENUE BOX 427 LEXINGTON MA 024209998 821199380 501 (C) 3 500000 0 RESEARCH DANA FARBER CANCER INSTITUTE 450 BROOKLINE AVE BOSTON MA 02215 042263040 501 (C) 3 483800 0 RESEARCH YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 060646973 501 (C) 3 450000 0 RESEARCH REGENTS OF THE UNIVERSITY OF MICHIGAN 1000 VICTORS WAY SUITE 1A ANN ARBOR MI 48109 386006309 501 (C) 3 49937 0 RESEARCH THE REGENTS OF THE UNIVERSITY OF CA 10889 WILSHIRE BLVD SUITE 700 LOS ANGELES CA 90095 956006143 501 (C) 3 160000 0 RESEARCH THE BRIGHAM AND WOMEN'S HOSPITAL INC PO BOX 3149 BOSTON MA 02241 042312909 501 (C) 3 28750 0 RESEARCH UNIVERSITY OF TEXAS PO BOX 4266 HOUSTON TX 77210 746001118 501 (C) 3 25000 0 RESEARCH STANFORD UNIVERSITY 485 BROADWAY MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501 (C) 3 173750 0 RESEARCH TEMPUS LABS INC 29280 NETWORK PLACE CHICAGO IL 60673 474903308 16200 0 RESEARCH 9 1 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 257815 0 0 0 0 0 6886 0 25509 0 290210 0 0 0 LAUREN HALL CDO 232657 0 0 0 0 0 6012 0 0 0 238669 0 0 0 KIRK TANNER CSO 194033 0 0 0 0 0 4635 0 8344 0 207012 0 0 0 ASHLEY BRENNAN EXECUTIVE DIRECTOR, PEER-TO-PEER FUN 161438 0 0 0 0 0 4360 0 25703 0 191501 0 0 0 KEVIN JEANS ASSISTANT CHIEF DEVELOPMENT OFFICER 185535 0 0 0 0 0 0 0 168 0 185703 0 0 0 X 2 57250 FMV 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC ACCELERATE BRAIN CANCER INNOVATION FUND LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 844245990 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC BRAIN TUMOR INVESTMENT FUND LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 845100031 BRAIN TUMOR RESEARCH DE 931339 1050573 NATIONAL BRAIN TUMOR SOCIETY INC TDG LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 862578255 BRAIN TUMOR RESEARCH DE 375488 375488 NATIONAL BRAIN TUMOR SOCIETY INC